Kansas City, KS- Manuel Romo, diagnosed with Loeys-Dietz Syndrome after his wife's persistent urging, had multiple heart surgeries, including a full aortic replacement by Dr. Todd Crawford and Dr. Kara Hessel.
His twin brother, sister, and mother likely had the syndrome, which causes aggressive aortic issues.
Manuel's aortic aneurysm was detected early, preventing a catastrophic dissection. The surgery involved replacing his entire aorta, a complex procedure with a 5-10% paralysis risk.
Manuel Romo, patient
- Manuel was also diagnosed with Marfan syndrome but later found to have Loeys- Dietz syndrome, a more aggressive connective tissue disorder.
- His aortic aneurysm was detected, and he underwent multiple surgeries, including a full aortic replacement.
- Manuel’s children tested negative for the syndrome.
Dr. Todd Crawford, Cardiothoracic Surgeon, The University of Kansas Health System
- Dr. Crawford outlined the unique approach at the University of Kansas Health System allows for complete aortic replacements.
- He emphasized the importance of early detection and genetic testing.
Dr. Kara Hessel, Vascular Surgeon, The University of Kansas Health System
- Dr. Hessel explained the surgeries involved replacing the entire aorta and reconstructing blood vessels.
- She outlined how the surgeries were performed under hypothermic circulatory arrest to minimize risks.
Friday, December 12th is the next Morning Medical Update:
Avoid ‘Holiday Heart’: Essential Tips to Protect Your Heart This Season
The holidays can mean parties, binge drinking and rushing around. It can be exhausting. It can also be hard on your heart. We discuss "holiday heart." Our team of doctors also shows you how easy it is to get a clear baseline with a simple cardiac test.